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کارگردان مستند «پدر پروانه‌ها» گفت: «بیماری پروانه‌ای نوعی بیماری‌ست که جز بیماران آن، کسی درد و رنج آنها را درک نمی‌کند.»


به گزارش خاص پرس به نقل از پایگاه معاونت اجتماعی وزارت بهداشت، یزدان پرونده، مستند‌ ساز، درخصوص مستند «پدر پروانه‌ها» گفت: این مستند درخصوص بیماری به نام «ای بی» است.


بیماری که به دلیل شکننده بودنش به نام بیماری پروانه‌ای شناخته شده است. از این جهت به این بیماران معصوم «پروانه‌ای» می‌گویند که مانند پروانه شکننده‌اند و هر گونه لمسی با پوست آنها می‌تواند به شدت دردناک باشد.


قصد داشتم از این طریق مسئولان را به خودشان بیاورم تا قدری به فکر راه درمان و یا تامین منابع مالی این بیماری باشند.


وی خاطرنشان کرد: امیدوارم این مستند بتواند ذره‌ای از مشکلات پیش روی این بیماران را حل کند و مسئولان با رسیدگی به این بچه‌ها قدری از درد آن‌ها بکاهند.

آذر ۲۸, ۱۳۹۶

«ای بی»؛ بیماری ناشناخته‌ و پنهان از چشم مسئولان

کارگردان مستند «پدر پروانه‌ها» گفت: «بیماری پروانه‌ای نوعی بیماری‌ست که جز بیماران آن، کسی درد و رنج آنها را درک نمی‌کند.»   به گزارش خاص پرس […]
آذر ۲۳, ۱۳۹۶

ریسک بالا ابتلا به دیابت در افراد مبتلا به اختلال عملکرد کلیه

  یافته های جدید نشان می دهد افراد مبتلا به اختلال عملکرد کلیوی در معرض ریسک بالا ابتلا به دیابت هستند. این خطر ناشی از افزایش […]
آذر ۱۲, ۱۳۹۶

لزوم تاسیس مرکز تحقیقات و درمان سرطان

دکترامیر نامی مقدم،متخصص رادیو تراپی آنکولوژی،در همایش سرطان غرب آسیا به خاص پرس گفت: «با توجه به روند رو به افزایش مبتلایان به سرطان و هزینه […]
آذر ۷, ۱۳۹۶

خبرهای تلخ و تکان دهنده از دیابت

به گزارش خاص پرس؛ دکتر امیرکامران نیکوسخن با استناد به آمارهای اخیر فدراسیون بین‌المللی دیابت گفت: ۴۲۵ میلیون نفر در جهان مبتلا به دیابت هستند. یعنی […]